At this time we do not use any cookies to gather information from users of this website, however, this is a practice used increasingly by charities, retailers, and other organisations in order to make your visit to their website easier.

What is a Cookie?

A cookie is a text file which can be sent from our website to your computer, in order to gather data about your visit.

How does it work?

When you register with us, the cookie will store certain data, so that your details are accessed immediately the next time you visit. This is a means of enhancing your experience with our website so that you don’t have to repeat the same set of questions and answers every time you visit.

What information is stored?

Each organisation has its own set of data parameters. At this time we have not determined what information we would gather, but it is likely to be: Your name; Your address; whether or not you, or a close family member, are personally affected by MLD; if you are a donor (whether affected or not) – it would record whether or not we had received a Gift Aid Declaration.

Privacy and Security:

We only use your information for administration purposes, and would not pass the data to any other person or organisation without your express permission. All information is password protected and not legally accessible to unauthorised persons.

You have the option on your browser settings to to permit or block cookies.