Announcing Family Fun Day at Drayton Manor Resort
Thanks to National Lottery funding the MLD Support Association UK Funday will take place on…
MLD adminJanuary 26, 2022
Christmas party announcement
Great News! We will be holding a virtual Christmas Party on Saturday 11th December 1pm-2pm…
MLD adminNovember 1, 2021
Christmas party 2021
Great News! We have secured funding from the National Lottery Community Fund to hold a…
MLD adminJuly 30, 2021
MLD UK registry news
Following long discussions around the current worldwide status of Registries for MLD and because of…
MLD adminJuly 12, 2021
Treating early onset MLD
We are pleased to report Orchard Therapeutics has received EC full (standard) market approval for…
MLD adminDecember 21, 2020
Lottery funding secured for care packages
Exciting news! Funding from the Coronavirus Community Support Fund, distributed by The National Lottery Community…
MLD adminSeptember 15, 2020
The Survey to understand the MLD patient and care-giver experience is now live
This research is extremely important for us to gather, so we can ensure that regulatory…
MLD adminAugust 28, 2020
Zoom Meeting for MLD Families
Friday 10 July at 11.30am It has been a very tough few months for all…
MLD adminJuly 2, 2020
COVID-19 update on shielding guidance
With the risk of catching coronavirus steadily decreasing, the UK Government announced changes to the…
MLD adminJune 25, 2020
Family Fun Day at Wicksteed Park
Saturday 7 September dawned mild and partly sunny. It was a perfect day for the…
MLD adminSeptember 18, 2019