Making a leap for rare diseases
Metachromatic Leukodystrophy (MLD) is classified as a Rare Disease There are over 300 million people…
MLD adminFebruary 27, 2020
Family Fun Day at Wicksteed Park
Saturday 7 September dawned mild and partly sunny. It was a perfect day for the…
MLD adminSeptember 18, 2019
Abseiling the ArclorMittal Orbit
Keiren Martin completed his Abseiling challenge from the ArclorMittal Orbit in August 2019. He regularly…
MLD adminSeptember 18, 2019
Celebrating National Lottery Community Funding
We are delighted to announce we have been awarded a National Lottery Community grant of…
MLD adminJune 6, 2019
Andrew Hudson learns of MLD sufferer and decides to support our work
Andrew Hudson recently learnt about a young man suffering from MLD and realised just how…
MLD adminMarch 18, 2019
Paul Warrington is running the London Marathon in 2019
Paul Warrington has known Scott Clark (sufferer of Adult-Onset MLD) for over 25 years. He is…
MLD adminJanuary 28, 2019
A Study of Intrathecal SHP611 in Participants with Late Infantile MLD
A new Clinical Trial has been announced by Shire (now part of Takeda Pharmaceutical Company…
MLD adminDecember 14, 2018
Children in Need
BBC’s Children in Need told the story of Joe and Connie Elson, two children who…
MLD adminNovember 20, 2018
Family Conference
The second MLD Support Association UK Family Conference was held at Wyboston Lakes in St.…
MLD adminJune 12, 2018
Scientific Conference
On Friday 8 June 2018, we held our second Scientific Conference at Wyboston Lakes in…
MLD adminJune 11, 2018