Sally Tooms completes the London Marathon
Sally Tooms successfully ran the London Marathon for MLD Support Association UK. She finished in…
MLD adminApril 26, 2023
Sally on the tele running the London Marathon
Sally Tooms is running the London Marathon for MLD Support Association UK. When she saw…
MLD adminApril 5, 2023
Niamh’s Skydive for MLD
Niamh Hitchman is planning a Skydive to raise awareness of MLD and raise funds for…
MLD adminApril 5, 2023
Archangel launches collaborative newborn screening campaign
The UK Newborn Screening programme desperately needs urgent revision to keep up with other Western…
MLD adminFebruary 14, 2023
Autumn Family Fun Day
Thanks to the National Lottery, we are delighted to confirm that the next MLD Family…
MLD adminSeptember 13, 2022
Can you spare your time and talent?
MLD Support Association UK is working hard to support families affected by MLD and to…
MLD adminJuly 22, 2022
Working with The MPS Society
MLD Support Association UK is a small charity with limited resources, so we value working…
MLD adminJuly 22, 2022
Gene Therapy Study for Late Juvenile Metachromatic Leukodystrophy (LJ MLD)
Following the wonderful news that Gene Therapy was approved for use in England by the…
MLD adminFebruary 22, 2022
NICE final guidance approves life-changing gene therapy for treating Metachromatic Leukodystrophy (MLD)
We are delighted to announce that Atidarsagene autotemcel (Libmeldy®) has been recommended as an option…
MLD adminFebruary 4, 2022
Announcing Family Fun Day at Drayton Manor Resort
Thanks to National Lottery funding the MLD Support Association UK Funday will take place on…
MLD adminJanuary 26, 2022