SSIEM is the Society for the Study of Inborn Errors of Metabolism
Scientists, clinicians, specialists and experts from all over the World attended this prestigious event which was held this year in Porto. This years attendance was over 2800 delegates and Nicola and I were able to attend as support group representatives to showcase the work and the collaborations we are involved with. Charities are able to create a stand which not only is free but allows the charity registration to the conference including meals, networking events, access to all talks and poster presentations.
Our stand was very popular, possibly because we had pens! But that meant we were able to meet many professionals we already know well and more importantly clinicians from all over the World that see MLD patients. Our leaflets were so popular we had to source a local printshop for more copies.
We also attended the Orchard symposium which had excellent presentations centring around newborn screening for which they made an excellent case as you can see from the photographs below (with permission as they are in the public domain). The symposium was very well attended and there were many questions asked and points of view expressed.
All in all an excellent meeting.
Jackie Imrie, Chair MLD Support Association UK
